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“I’ve had my breakdowns, you know trying to hold it together. It’s scary knowing that my son could die,” Judy Kell, Phillips’ mother, said. note 2 note 2 Thirteen years later, Charlie “didn’t end up dying, he ended up thriving,” she said. When he was 5 years old, he underwent an experimental skin grafting procedure at the University of Minnesota in an attempt to make his skin stronger and less prone to blistering. Knuth called it a “transformation” for her young son, who had two “really good” years before his body rejected the graft and he began to suffer from aplastic anemia, a potentially deadly condition that occurs when the body doesn't produce enough red blood cells. note 2 note 2 Charlie, who suffers from EB, was recently diagnosed with cancer.(Trisha Knuth/Facebook) note 2 note 2 “I’m it,” Lewallen told the Associated Press. “To keep a critical access hospital open, you have to have X-ray and lab functioning,” he said. “If one of those go down, you go on diversion and you lose your ER at that point. We don’t want that to happen, especially for the community.” note 2 note 2

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